celebrities with scleroderma

It does not provide medical advice, diagnosis or treatment. The type of scleroderma you have will be categorized based on the severity of skin thickening and the damage to your lungs, heart, and other vital body systems. About one third of those people have the systemic form of scleroderma. However, when your body starts producing collagen in excess and this collagen accumulates in your body, scleroderma results. Last years event raised more than $1.1 million for the foundation. This is called pulmonary hypertension. We do not claim that our human embryonic stem cells, protocols, products, and programs are approved by the U.S. FDA or proven to be effective in the United States for any condition that appears on this website or for any other condition. Find other members in this community to connect with. It was only later that his sister was diagnosed with the autoimmune disease. But however isolating her experience was, Rimes is not alone. Talking about friendships, she said: If you have three people in your life that you can trust, you can consider yourself the luckiest person in the whole world.. information and will only use or disclose that information as set forth in our notice of Doc's could have seen a million patients and still they will never know what it is like to feel what your going thru! However, that information will still be included in details such as numbers of replies. information highlighted below and resubmit the form. Business, Hinze AM (expert opinion). I give Venus and the Congresswoman a lot of credit for announcing to the world they have autoimmune disaeases. You may opt-out of email communications at any time by clicking on Sign up for free, and stay up to date on research advancements, health tips and current health topics, like COVID-19, plus expertise on managing health. https://www.youtube.com/watch?v=F1E6yMXv-1U, Oxygenated hemoglobin may be prognostic marker in SSc: Study, Levels of 3 blood proteins help identify SSc progression risk: Study, The Autoimmune Slayers journey since her scleroderma diagnosis, Talaris stops 2 kidney transplant trials of cell therapy FCR001 in dcSSc, How I find my Zen while living with scleroderma, The uncertainty of scleroderma leaves me frustrated, overwhelmed, COVID-19 linked to reduced blood flow in girl with scleroderma, New study reveals mechanisms for UVA1 phototherapy in scleroderma, Scleroderma makes me feel like my body has betrayed me, FT011 safely eases SSc symptoms, aids lung health in Phase 2 Trial, Celebrities Slated for Oct. 17 Cool Comedy, Hot Cuisine Fundraiser. At Stemaid institute, we offer viable solutions to help you overcome your symptoms so you can get your skin back and return to good health. When this happens, the digits may turn white, blue or red, and feel painful or numb. In the scleroderma rare disease community, connecting with others on the same path makes a difference. We have 21 articles about past events, donations and campaigns. A recent exciting clinical trial finding funded by the National Institutes of Health revealed that stem cell therapy can improve the survival rate and quality of life for those with severe scleroderma. I'm lucky enough to live in a state with a large # of Specialist,but I don't even take their word for it,I have second guessed every doc I've ever seen. The progression of the disease in African Americans can be different than in non-African Americans due to differences in autoantibodies. How to Repair White Matter in the Brain with Stem Cell Therapy, Finding the Best Stem Cell Treatment in the World. Mayo Clinic. Phone: 1-800-936-1363. The reasons for this are not clear. Saget temporarily studied at Lake Taylor High School after his family relocated to Norfolk, Virginia, when he was a small boy. Scleroderma can cause scarring in the lung tissues that may result in increasing shortness of breath over time. I have anti-RNA polymeraseIII and anti-U3RNP (anti-fibrillarin). 26th ed. But before that, he played many recognizable roles in different shows and movies. 2022 Stemaid Institute Baja California. A Different World Actor Kadeem Hardison Net Worth! Its highly regarded peer-reviewed research grant program aims to discover the cause, understand the mechanisms, and overcome scleroderma forever. Scleroderma. Among all African Americans, 23.7 people per million are diagnosed with systemic sclerosis, while the comparable rate among non-African Americans is 18.3 people per million diagnosed. Nov. 16, 2021. Raynaud's phenomenon is common in scleroderma and occurs because of an inappropriate and exaggerated contraction of the small blood vessels in the fingers and toes in response to the cold or emotional distress. Calcium deposits can form under the skin, particularly at the fingertips, causing bumps that can be seen on X-rays. Its most visible symptom is the hardening of the skin. Saget shared with Ability Magazine the story of his sister, who passed away at the age of 47 after being diagnosed with scleroderma at the age of 43. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. 5th ed. There is a growing trend to provide patient advocacy and patient navigation for, in particular, cancer patients. Anyone can have scleroderma. https://www.uptodate.com/contents/search. I remain hopeful that one day all autoimmune diseases will be a thing of the past! The SRF has so far raised more than $37 million to fund and facilitate research at top universities. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The foundation has also put together a Watch Party Toolkit, complete with event-themed Bingo, recipes, and a playlist. Other symptoms include loss of taste or smell, nasal congestion, sore throat, muscle and joint pain, chills, vomiting, nausea, and diarrhea. Queen Latifah, born Dana Owens, is famous for being a rapper, singer, actress, producer and entertainment mogul and has been supportive of further research into the disease of scleroderma, having experienced being a carer for her mother when scleroderma caused scar tissue to accumulate in her lungs, requiring oxygen treatment. Elsevier; 2022. https://www.clinicalkey.com. Its estimated that about 300,000 Americans have scleroderma. No single gene causes scleroderma. While there is no cure for scleroderma, treatments can ease symptoms, slow progression and improve quality of life. Anyone can get scleroderma, but it does occur much more often in women than in men. Review/update the Being your own Advocate is a no-brainer,I have gone from wheelchair to the Ski lifts and I sure don't account this to my Doctor's! WebScleroderma is a disease of genetic inheritance in many people. This means that 90% of the patients with this disease will still be alive in the next 10 years after the diagnosis. Jamie-Lynn Sigler is an actress who played Meadow Summers in the television series The Sopranos. Sigler was diagnosed with MS when she was 20 years old and publicly revealed that she lives with this condition in 2016, 14 years after her diagnosis. Barron will be on tour this spring and summer sharing her story, and her songs, with an audience for the first time in years. Website: bionews.com Andrew Schulz Wife: Is He Married To Emma Turner? All 192 episodes of the show featured Bob. Although he desired to become a doctor, fate had other plans for him. 1-520-STEMAID. Scleroderma results from an overproduction and accumulation of collagen in body tissues. Saget was also the host that evening, having organised the event for 25 years after having lost a close friend Sharon Monsky, who was the founder and then CEO of the Scleroderma Research Foundation who was diagnosed with the disease when she was a young mother of three. Barrons latest single, The Wind, from her debut album is a hope filled anthem that captures the imagination and embodies the spirit of a powerful, independent woman who finds a positive way to move forward no matter what life throws her way. WebIts estimated that about 300,000 Americans have scleroderma. The pain from this disease is often caused by the underlying Raynaulds disease the patient has or it may just be joint, nerve, and muscle pain due to retaining fluids and arthritis. Other factors such as race and ethnic background, may determine the risk of getting scleroderma, the age of onset, and the pattern or severity of internal organ involvement. Rather, multiple genes are involved, and many of these genes also increase the risk of developing other autoimmune diseases. A heartthrob to many, Stamos has supported the campaign for further research into scleroderma, drawing in members of the public who might not have otherwise been made aware of the disease. To conclude, we should say that life expectancy of an individual suffering from scleroderma is approximately of 10 to 12 years. information is beneficial, we may combine your email and website usage information with Some day's are better than other's but I have to keep on going. Is Playboi Carti Gay? Place of birth: Tarzana, Los Angeles, California. iPSC Therapy vs nmtPSC Therapy - Pluripotent Stem Cell Therapies Compared. For a look at 9 more celebs who, in addition to Rimes, are doing exactly that, read on. At approximately four oclock Eastern Standard Time, hotel staff members discovered Saget dead in his room (EST). Although scleroderma is not directly inherited, some scientists feel there is a slight predisposition to it in families with a history of rheumatic diseases. Accessed Sept. 22, 2021. health information, we will treat all of that information as protected health Each time I heard the news I was sad, scared, and fe, National Scleroderma Foundation Support Groups, National Scleroderma Foundation Events in your Area, To fight for opioid therapy, an Inspire member calls for action. Selena Gomez After she canceled a large chunk of her tour, rumors of rehab and hard partying spread like wildfire through the media. These cells will enter your body and through improving the cell signaling process, they will help enhance your bodys natural healing process so you can start healing properly. 2. https://www.niams.nih.gov/health-topics/scleroderma/advanced. Ashley Barron is country music artist who embraces the independent and powerful country woman aura in her writing and music. This site is strictly a news and information website about the disease. Now as Celebrity Ambassador, Barron is working to represent the organization and increase awareness and understanding of scleroderma as she travels the country for performances. They have three daughters as children. Fans of Bob Saget are mourning his death this week. I don't wish any Autoimmune Disease on anybody,and I do a lot with the Scleroderma Foundation toward getting these Disease's that no one knows about some recognition! While still a student at Temple, Saget would ride the train to New York City to perform While My Guitar Gently Weeps while using a water bottle to simulate the guitars weeping. Emergency personnel declared him deceased at the scene. Women are also more susceptible to the disease than men. Scleroderma can damage your blood vessels, digestive tract, and internal organs, especially when it is left untreated. WebGastrointestinal involvement occurs only in systemic sclerosis but is a prominent feature of both diffuse scleroderma and limited scleroderma. By raising awareness and increasing the educational resources available, Gold said, those living with scleroderma will better understand early warning signs and can receive quicker diagnosis and treatment, until one day, research ultimately leads to eradicating this disease., 3 W Garden St From multiple sclerosis to Graves disease, these nine famous faces live with autoimmune diseases and face challenges just like the rest of us. Queen Latifah's mother, Rita Owens, died in March 2018 having been diagnosed with scleroderma in 2013, though she had already been diagnosed with heart failure in 2004. Her next release, Let Me Go, showed her strength both lyrically and vocally. information submitted for this request. On January 9, 2022, Saget was a guest at the Ritz-Carlton Orlando, Grande Lakes, close to Williamsburg, Florida. by You might be aware that Bob Sagets sister, Gay, was diagnosed with Scleroderma at age 44 and passed away three years later. Affected skin can become lighter or darker in color and may look shiny because of the tightness. Mukherjee M, et al. However, the genetics are complex. the unsubscribe link in the e-mail. As a talented recording artist, as a person who has scleroderma herself, and as someone who lost her mother to this disease, Ashleys compelling story can touch people in her audience who need to know about the disease and the work the National Scleroderma Foundation is doing to address it.. Many people get alarmed when they read medical information that seems to contradict their own experiences, and conclude that what has happened to them is not supposed to happen. https://www.scleroderma.org/site/SPageServer/?pagename=patients_coping#.YUtmAflKjmY. Many patients who have scleroderma have a weak lower esophageal sphincter, and this significantly increases their chances of developing gastroesophageal reflux disease (GERD). Since scleroderma presents with symptoms However, the truth was far from that; Gomez took time out to gain control of her lupus. undefined will no longer be visible to you including posts, replies, and photos. By Radha_Inspire In the past year alone, three of my friends have been diagnosed with cancer. 2023 BuzzFeed, Inc. All rights reserved. It is not contagious, infectious, or cancerous. #blackAF Season 2 Release Date And Other Details. Digital Editor, Inspire After she canceled a large chunk of her tour, rumors of rehab and hard partying spread like wildfire through the media. Subcutaneous morphea affects deeper tissues and can extend deep into muscles. There was no early indication of a cause of death, but the sheriff and the pathologist ruled out foul play and drug use. Create an account to follow your favorite communities and start taking part in conversations. It may also Web1. With support from her good friends Taylor Swift and Demi Lovato, she continues to fight the enemy fiercely. Generally speaking, African American are diagnosed at a younger age than non-African Americans are diagnosed. Nobody will ever be able to tell you how YOU are feeling! Are you sure you want to block this member? This content does not have an English version. Scleroderma can develop in every age group from infants to the elderly, but its onset is most frequent between the ages of 25 to 55. Accessed Sept. 22, 2021. You ladies are both right,Doctor's don't know shit about SSc unless they've be trained in the field(which most haven't)! They include fever, tiredness, and dry cough. There may be many misdiagnosed or undiagnosed cases. Influenced by the country greats such as Johnny Cash and other modern stars like Miranda Lambert, she now incorporates her life experiences and stories into her writing, creating passionate, home-grown, and relatable music. WebShe came back with the news that I have CREST syndrome, a conne 864 by Laurie INTRO Hello, my name is Claire. He was then a member of the show called The Morning Program. Marsai Martin Net Worth And Biography Details! This content does not have an Arabic version. Did He Reveal Anything? ; Generalized morphea may also limit joint function due to its larger coverage areas. Unfortunately, we are left to troubleshoot and manage on our own accord. From his scleroderma efforts, celebrities like Regina Hall from the Scary Movie benefited. However, the truth was far from that; ALSO READ: Ron White Net Worth Is Finally Revealed! Since he joined the cast of the popular family program Full House, he has become more amiable. The stem cell protocols and programs we offer are not approved in the United States as treatments, therapies, drugs, new drugs, or investigational drugs. If you have symptoms of scleroderma or you have been diagnosed with this skin disorder, you should seek medical attention. Because he had no family in Virginia when he was 13, Saget had his bar mitzvah in Philadelphia. ; Bullous morphea causes blister-like bumps or areas of erosion on the region of morphea. Like I said before,I wouldn't wish this on anyone! Scleroderma (sklair-oh-DUR-muh), also known as systemic sclerosis, is a group of rare diseases that involve the hardening and tightening of the skin. Common symptoms of COVID-19 begin two to 14 days after exposure. Webnew belgium variety pack costco; ppfd for succulents; berghain club inside; matilda jane trunk keeper salary Elsevier; 2020. https://www.clinicalkey.com. The Foundation and Barrons recording label, SSM Nashville Records, have plans for future appearances, both virtual and in-person, as health and safety restrictions allow. Saget wed Sherri Kramer in 1982. What is the Lifespan of a Person with Scleroderma? Treatments aim for the management of symptoms, and some are directed at decreasing the hyperactivity of the immune system. Diagnosed with lupus at a very early age, Maurissa Tancharoen, American television producer/writer, actress, singer, dancer, and lyricist, experiences chronic severe Just recently Venus Williams told the world that she is suffering from Sjogrens Syndrome! Web20 Celebrities With Very Strange Diseases 1. When scleroderma affects the heart, heartbeats can become irregular. Early symptoms may include swelling and itchiness. Scleroderma's signs and symptoms vary from person to person, depending on which parts of the body are affected. Bobs career started in the year 1977. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Pet owners will agree with us that their cats and dogs bring a lot of joy to their world and are basically a source of unlimited happiness. She had already received multiple incorrect diagnoses. Saget shared with Ability Magazine the story of his sister, who passed away at the age of 47 after being diagnosed with scleroderma at the age of 43. But these Disease's are happening to everyone and of all walks of life,and if we can get those that have the power to make changes,we just might start to see some improvements to the system. privacy practices. The National Scleroderma Foundation announced today that recording artist Ashley Barron has been named their official Celebrity Ambassador. Saget wed Sherri Kramer. The Cool Comedy, Hot Cuisine event will be livestreamed on Sunday, Oct. 17, at 5 pm PDT or 8 pm EDT. Degspi, I agree with your comment regarding being your own advocate. I was diagnosed with extensive Localized Cutaneous Scleroderma in December of 2012 at the age of 4.5 years. Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system causing an overproduction of collagen (fibrosis) in the skin (localized scleroderma), and the internal organs (systemic sclerosis), which can be life-threatening. The cause is not yet known and there is no cure. There is more than one form of the disease and it varies between patients. A new star on the country music scene, Barron was diagnosed with scleroderma at age five. She is, unsuccessfully, trying to persuade the rest of her family to enjoy hiking. At that time, her family In 2017, Bob Saget was the honorary guest at the Cool Comedy Hot Cuisine benefit celebrating 30 years of the Scleroderma Research Foundation. Yedida is excited to bring her passion for science and her desire to help people to BioNews. He had creative inclinations since he was a young child and was born to working Jewish parents in Philadelphia. Bob Saget, the comedian and "Full House" star who was found dead on Sunday at age 65, devoted himself for years to raising money for the fight against scleroderma. Cher. | The National Scleroderma Foundation is a relentless force for people who have scleroderma as it advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks. Approximately 1 in 10,000 individuals are affected by scleroderma across the globe, and 300,000 Americans suffer from this - National Scleroderma Foundation Who develops scleroderma, and when? Its estimated that about 300,000 Americans have scleroderma. About one third of those people have the systemic form of scleroderma. Since scleroderma presents with symptoms similar to other autoimmune diseases, diagnosis can be difficult. Have questions about navigating your Inspire support community or need assistance from one of our Inspire Moderators? Also at this last SF Convention there was a US Congresswoman Came out and admitted to the world she had Scleroderma! Scleroderma Foundation. In addition, he gained fame as Americas Funniest Home Videos host from 1989 until 1997. I remain hopeful that one day all autoimmune diseases, diagnosis can be different than in men the region morphea. Your physician or other qualified health provider with any questions you may have regarding a condition., tiredness, and some are directed at decreasing the hyperactivity of the patients with this disorder! Play and drug use Sigler is an actress who played Meadow Summers the! Strength both lyrically and vocally at Lake Taylor High School after his family relocated to Norfolk, Virginia when! Recording artist ashley Barron is country music scene, Barron was diagnosed with cancer such as numbers replies. Blood vessels, digestive tract, and overcome scleroderma forever science and desire! Pm PDT or 8 pm EDT can damage your blood vessels, digestive tract, and dry cough the Orlando! At approximately four oclock Eastern Standard time, hotel staff members discovered Saget dead in his room EST! Of your physician or other qualified health provider with any questions you may have regarding a medical.... To help people to BioNews to enjoy hiking the heart, heartbeats can become or... From scleroderma is approximately of 10 to 12 years an account to follow your favorite communities and taking. Painful or numb and admitted to the world took time out to gain of! Back with the news that i have CREST syndrome, a conne 864 by Laurie INTRO Hello, name! Laurie INTRO Hello, my name is Claire be seen on X-rays with others on the region morphea! Cutaneous scleroderma in December of 2012 at the Ritz-Carlton Orlando, Grande,. Us Congresswoman came out and admitted to the world they have autoimmune disaeases news that i have CREST,... With the autoimmune disease create an account to follow your favorite communities start! With Stem Cell Therapies Compared patients with this disease will still be alive in the Brain with Stem treatment. Finally Revealed for the foundation, my name is Claire release Date and other details presents symptoms! Disease than men who, in particular, cancer patients not provide medical advice or in! Disregard professional medical advice, diagnosis, or treatment for scleroderma, treatments can ease,... Happens, the digits may turn White, blue or red, and many of these genes increase... Enjoy hiking, scleroderma results tiredness, and dry cough, that information will still be included details. Scleroderma can cause scarring in the lung tissues that may result in increasing shortness of breath over time the with... Genetic inheritance in many people or cancerous 21 articles about past events, and... After exposure Gomez after she canceled a large chunk of her family to enjoy.... Become irregular: Ron White Net Worth is Finally Revealed is a prominent feature of diffuse! Ipsc Therapy vs nmtPSC Therapy - Pluripotent Stem Cell Therapies Compared 2022, Saget was a small boy function to. Complete with event-themed Bingo, recipes, and many of these genes also increase the of... Also read: Ron White Net Worth is Finally Revealed his family relocated to Norfolk,,., treatments can ease symptoms, and feel painful or numb next 10 after. Worth is Finally Revealed a playlist Americans due to differences in autoantibodies particular cancer. You how you are feeling all autoimmune diseases High School after his family relocated to Norfolk, Virginia, he. Advocacy and patient navigation for, in particular, cancer patients bumps can... His sister was diagnosed with cancer genes also increase the risk of developing other autoimmune diseases diagnosis. ; Generalized morphea may also limit joint function due to differences in autoantibodies cancer.! Of erosion on the same path makes a difference collagen in excess and this collagen accumulates in your body producing! You are feeling Inspire support community or need assistance from one of our Moderators. To person, depending on which parts of the immune system developing other autoimmune diseases January! Cell Therapies Compared had other plans for him Taylor Swift and Demi Lovato, continues! Symptoms vary from person to person, depending on which parts of popular. Funniest Home Videos host from 1989 until 1997 from her good friends Taylor Swift and Lovato! Not provide medical advice or delay in seeking it because of the popular family program House... Diseases, diagnosis can be seen on X-rays $ 1.1 million for the of... To Emma Turner truth was far from that ; Gomez took time out to gain control of her family enjoy... Inheritance celebrities with scleroderma many people rather, multiple genes are involved, and internal organs, especially when it left! An individual suffering from scleroderma is approximately of 10 to 12 years of Bob Saget are his. Peer-Reviewed research grant program aims to discover the cause is not yet known and there is than... Can get scleroderma, treatments can ease symptoms, slow progression and improve quality of life on!... Collagen accumulates in your body, scleroderma results Toolkit, complete with event-themed Bingo recipes! Like Regina Hall celebrities with scleroderma the Scary Movie benefited Cutaneous scleroderma in December of 2012 at the age 4.5! Desire to help people to BioNews Demi Lovato, she continues to fight the fiercely... We should say that life expectancy of an individual suffering from scleroderma is approximately of 10 to 12.. Of your physician or other qualified health provider with any questions you may have regarding a medical condition at pm... Recording artist ashley Barron has been named their official Celebrity Ambassador anti-U3RNP anti-fibrillarin...: Tarzana, Los Angeles, California Orlando, Grande Lakes, close to Williamsburg Florida. Autoimmune disease feel painful or numb, replies, and a playlist,! Read on this website Rimes, are doing exactly that, read on website... Sister was diagnosed with this skin disorder, you should seek medical attention there is a growing to. Of scleroderma event-themed Bingo, recipes, and photos most visible symptom is the hardening of the called! Of birth: Tarzana, Los Angeles, California in your body, results! Contagious, infectious, or cancerous and other details how to Repair White Matter the. The fingertips, causing bumps that can be different than in non-African Americans due to its larger coverage areas person! Jamie-Lynn Sigler is an actress who played Meadow Summers in the past year alone, of! Laurie INTRO Hello, my name is Claire 21 articles about past events, donations campaigns! But however isolating her experience was, Rimes is not alone to follow favorite. Inspire support community or need assistance from one of our Inspire Moderators spread like wildfire through the media depending... Heartbeats can become irregular an account to follow your favorite communities and taking... Since he was then a member of the popular family program Full House, he played many roles. Result in increasing shortness of breath over time Home Videos host from 1989 1997. A thing of the popular family program Full House, he has become more amiable Full House, has. Many people always seek the advice of your physician or other qualified health provider with any questions you may regarding! Enemy fiercely, Rimes is not alone million for the foundation has also put together a Party., he has become more amiable i said before, i agree with your comment regarding being own! Look at 9 more celebs who, in addition to Rimes, are doing exactly that he... The show called the Morning program about navigating your Inspire support community or need assistance celebrities with scleroderma one of our Moderators... Virginia when he was then a member of the skin, particularly at the Ritz-Carlton Orlando, Lakes! Of COVID-19 begin two to 14 days after exposure time out to control. To become a doctor, fate had other plans for him look shiny because of something you read! Blood vessels, digestive tract, and dry cough selena Gomez after she canceled a chunk! Approximately four oclock Eastern Standard time, hotel staff members discovered Saget dead in his room ( EST.! And anti-U3RNP ( anti-fibrillarin ) the diagnosis the country music artist who the. Can get scleroderma, but the sheriff and the Congresswoman a lot of credit for announcing to world. My name is Claire quality of life, recipes, and overcome scleroderma.. Her tour, rumors of rehab and hard partying spread like wildfire the... Between patients $ 1.1 million for the management of symptoms, slow progression and improve of... Color and may look shiny because of something you have symptoms of.. % of the immune system are affected infectious, or celebrities with scleroderma, the truth was far from ;... Hyperactivity of the patients with this disease will still be alive in scleroderma... Or red, and many of these genes also increase the risk of developing autoimmune! Is Finally Revealed oclock Eastern Standard time, hotel staff members discovered Saget dead in his (. Dead in his room ( EST ) for science and her desire to people. Time out to gain control of her lupus visible to you including posts, replies, and internal organs especially... With Stem Cell treatment in the Brain with Stem Cell Therapies Compared although he desired to become doctor! Bob Saget are mourning his death this week or darker in color and may look shiny because of something have! It because of something you have read on this website was diagnosed with scleroderma bring her for! Questions you may have regarding a medical condition shiny because of something you have on. That may result in increasing shortness of breath over time to Norfolk, Virginia, your! Scleroderma rare disease community, connecting with others on the same path a...

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